In two weeks time I have a pretty important hospital appointment that I’ll have to travel out of Cumbria for. It’s a complete pain in the bum but I know if I want the best treatment I’m going to have to go to hospitals that deal with rare illnesses like mine.
I’ve been making journeys like this for the past four years and they don’t get any easier. I have to be up and out for much longer than usual. I don’t get a choice about being well enough or not, I just have to go and I’ll deal with the consequences when I get back home.
Most appointments like these send me hurtling back down to earth with a bang. I’m reminded of how bad my health can get and we talk through the list of treatments that I’ve almost exhausted. My parents have always tried to team appointments like this with something more enjoyable (if I’m well enough) so this time we’re heading to Ikea to pick up some bits before coming home.
We’re making our shopping lists before we go to cut down on time, walking and generally make it a bit easier on me. In my dream world this is what I’d be buying (£537):
A little bit different hey? It makes sense for now to only get the things that we need but I can’t stop dreaming about all the things I want to get for our house, especially the huge rug (2m x 3m). In fact, my latest way to get to sleep is to go through redecorating each room in my head! Perhaps I should go back to counting sheep until I win the lottery…